Publications

  • In a survey of 265 Australian patients and caregivers with atopic dermatitis, many reported unsatisfactory quality life and treatment results. To afford care, patients have to change their financial habits. Additionally, patients with care centered around shared-decision making and training outside of doctors office reported better experiences. For the full publication, click here

    Howie L, Orevillo K, Tu M, Schwartz A, Funk M, Talent C, Capozza K. The burden of atopic dermatitis in Australia: Medical care, treatment satisfaction, financial impact, long-term control and quality of life. Australas J Dermatol. 2024 May 8. doi: 10.1111/ajd.14299. Epub ahead of print. PMID: 38715470.

  • In Spain, patients and caregivers report low treatment satisfaction, poor symptom control, and limited support from general practitioners. Better outcomes were linked with access to specialists, clear treatment plans, and shared decision-making. This study emphasizes the need to improve primary care training, increase specialist referrals, and involve patients in treatment planning. For the full publication, click here

    Capozza K, Tu M, Schwartz A, de Tena Smith ÁL. Atopic dermatitis in Spain: Patient and caregiver experiences with disease burden, care and treatments. Aten Primaria. 2024 May;56(5):102908. doi: 10.1016/j.aprim.2024.102908. Epub 2024 Mar 12. PMID: 38479199; PMCID: PMC10944104.

  • A 2024 multi-study review found that treating anxiety and depression may help improve the overall well-being of AD patients. Through studying different psychological and medical treatments, both led to meaningful improvements in mental health symptoms. These findings demonstrate the importance of mental health care alongside AD treatment in patient livelihood. For the full publication, click here

    Hartono, S.P., Chatrath, S., Aktas, O. et al. Interventions for anxiety and depression in patients with atopic dermatitis: a systematic review and meta-analysis. Sci Rep 14, 8844 (2024). https://doi.org/10.1038/s41598-024-59162-9

  • A 2024 study of 673 patients and caregivers in Argentina found that AD was correlated with high emotional and financial stress. Those educated about AD and involved in the treatment planning process were linked with higher satisfaction and better symptom control. These findings amplify the need for improved patient education, more collaborative care, and financial resources to reduce AD burden in Argentina. For the full publication, click here

    Capozza K, Tu M, Schwartz A , Johnson JL, Ladner M. Patients' and Caregivers' Experiences Navigating the Burden of Atopic Dermatitis in Argentina. Medicina (Kaunas). 2024 Mar 31;60(4):584. doi: 10.3390/medicina60040584. PMID: 38674230; PMCID: PMC11052293.

  • The 2023 AAAAI/ACAAI guidelines provide steps for treating atopic dermatitis. The major recommendations are confirming diagnosis, educating patients, avoiding triggers, and frequent use of fragrance-free moisturizers. Diet cuts were not found to make a significant impact, and bleach baths are usually more effective for serious/moderate cases. The guidelines emphasize involving patients in decisions and tailoring treatment. For the full publication, click here

    5. AAAAI/ACAAI JTF Atopic Dermatitis Guideline Panel; Chu DK, Schneider L, Asiniwasis RN, Boguniewicz M, De Benedetto A, Ellison K, Frazier WT, Greenhawt M, Huynh J, Kim E, LeBovidge J, Lind ML, Lio P, Martin SA, O'Brien M, Ong PY, Silverberg JI, Spergel JM, Wang J, Wheeler KE, Guyatt GH; Patient Groups, GlobalParents for Eczema Research; Capozza K; National Eczema Association; Begolka WS; Evidence in Allergy Group; Chu AWL, Zhao IX, Chen L, Oykhman P, Bakaa L; AAAAI/ACAAI Joint Task Force on Practice Parameters; Golden D, Shaker M, Bernstein JA, Greenhawt M, Horner CC, Lieberman J, Stukus D, Rank MA, Wang J, Ellis A, Abrams E, Ledford D, Chu DK. Atopic dermatitis (eczema) guidelines: 2023 American Academy of Allergy, Asthma and Immunology/American College of Allergy, Asthma and Immunology Joint Task Force on Practice Parameters GRADE-and Institute of Medicine-based recommendations. Ann Allergy Asthma Immunol. 2023 Dec 18:S1081-1206(23)01455-2. doi: 10.1016/j.anai.2023.11.009. Epub of print. PMID: 38108679.

  • The 2023 Big Ideas Challenge collected 70 entries from 11 countries from patients and caregivers. This project spearheads patient driven research and awards outstanding ideas from the community. For the full publication, click here

    Moxham F, Cutaran C, Sadocha J, Capozza K. Hidden gems: a pilot project to solicit and reward patients' and caregivers' ideas for research. Res Involv Engagem. 2023 Oct 13;9(1):93. doi: 10.1186/s40900-023-00473-y. PMID: 37833815; PMCID: PMC10576294.

  • In 2023, researchers surveyed 1,293 adults and 370 caregivers. They found that 72% of adults and 66% of children saw a specialist, and that having a specialist correlated with better long-term symptom control. Participants with higher anxiety or depression scores tended to have worse control. Results were optimized when patients had both specialist care and mental health support. For the full publication, click here

    7. Chong AC, Schwartz A, Smith Begolka W, Tullos KZ, Capozza K. Specialist care and mental health is associated with long-term control of atopic dermatitis symptoms: A cross-sectional survey of patients and caregivers in the United States. JAAD Int. 2023 Aug 31;13:112-114. doi: 10.1016/j.jdin.2023.08.016. PMID: 37779557; PMCID: PMC10541459.

  • Anxiety and depression were common in AD patients, yet little resources are available. Peer led support and psychological tools may help improve well-being. For the full publication, click here

    Chatrath S, LeBovidge J, Jack C, Abuabara K, Schneider LC, Capozza K, Kelley K, Silverberg JI. Mental health interventions for atopic dermatitis: knowledge gaps, pilot programmes and future directions. Clin Exp Dermatol. 2023 Dec 19;49(1):9-17. doi: 10.1093/ced/llad315. PMID: 37706273.

  • In a 2023 analysis of 149 clinical trials with 28,686 patients compared 75 systemic treatments for moderate-to-severe atopic dermatitis. Various JAK inhibitors, biologics, and older treatments such as oral steroids were tested for efficacy and safety.

  • A 2023 analysis of 219 clinical trials with over 43,000 patients compared 68 prescription topical treatments for atopic dermatitis. Pimecrolimus, tacrolimus, and moderate-potency TCS were found to be some of the most effective treatments while topical antibiotics may be the least effective. Read more here

  • In a 2023 survey of 323 patients and caregivers, temperature and weather was the most common trigger. Steroid avoidance and concern for steroid exposure were widely reported. Read more here

  • In a 2024 survey of 279 adult AD patients and 154 caregivers from 26 countries, caregivers reported significantly worse mental health than adult patients. Many responses selected managing itch, wearing clothes to cover up, and avoiding social situations as techniques to improve AD related mental health concerns. Read more here

  • In 13 countries, 1447 children and adolescents and over 2,000 caregivers and physicians took part in a survey ranking eczema symptoms from least to most important. The most burdensome item was the impact on sleep and shame. Read more here

  • In a systematic review to address patient values, 6 key themes were found that may be applicable to bettering clinical care, practice guidelines, and future research. Read more here

  • In a study of 460 children and 98 parents, eczema severity was measured to understand the impacts of language on eczema treatment. It was found that using patient-reported outcomes is imperative to understanding symptoms and disease treatment of eczema. Questionnaires without access to an interpreter was linked with miscommunication and under treatment, targeting those with english as a second language. Medical interpretation in areas with less english proficiency is needed to bridge the gap from treatment and patient experience. Read more here

  • A global survey across eight countries found that Atopic Dermatitis impacts quality of life more than other chronic diseases such as asthma or type two diabetes. Additionally, effects of AD disproportionally affect children and families with financial strain. Specialists, access to self-management tools, and shared decision making were linked to better outcomes. With the support of 11 patient advocacy groups and publication in a peer reviewed journal, this study highlights the urgent need for more patient-centered eczema care. Read more here

  • The PERMA model is a positive psychology technique, where researchers test factors relating to Positive Emotion, Engagement, Relationships, Meaning, and Accomplishment. By using feel-good experiences, the study found that eczema patients were more likely to build resilience and self confidence. In the study, 20/20 pediatric patients and 19/20 caregivers noted at least one of the PERMA techniques. A correlation between greater PERMA use and higher resilience level was found. Read more here

  • By extracting 264,747 posts from online eczema patient communities, 344 common topics were found, with majority focusing on the psychosocial impacts of eczema. This study was design to understand priorities for social media in the patient community. Top comments were related to psychosocial impacts, followed by moisturizing and itch. Questions about moisturizing regimen and side effects of skincare ingredients were also commonly commented by patients and parents. Read more here

  • By using a scale from 1 to 5 to quantify eczema impact on pediatric and adult patients, this study found that the most impacted subdomains were sleep, family dynamics, and family responsibilities. Read more here

  • Eczema clinical guidelines often neglect the voice of patients and caregivers. A comprehensive review of various guidelines prove that there is still a gap in care. This publication highlights the importance of integrating patient and caregiver voice in the development of eczema care guidelines. Read more here

  • An analysis of various randomized controlled trials and studies was done to compare the impacts of elimination diets on eczema. Dietary elimination lead to a slight, potentially unimportant improvement of eczema severity, itch, and sleep disturbance in patients with mild to moderate eczema. Read more here

  • Responses on the eczema caregiver experience were collected from 417 individuals. The three domains focused were mental burdens, impacts on personal/family life, and impact on wellbeing. Many reported on feeling anxious/frustrated, struggles in vacation opportunities, and changes in sleep and diet. Read more here

  • The Institute of Medicine created an updated definition to creating trustworthy guidelines to optimize care. Key factors in building quality care takes into account both practitioner and patient decisions and preferences, follow a rigorous development process, and apply principles of evidence based medicine.

  • In a multidimensional analysis of 1,065 adult AD patients, impact on life and wellbeing of eczema patients were evaluated. Severity and time spent managing symptoms were found to be the strongest predictors of disease burden.

  • In a systematic review of 32 studies, treatment nonadhere and the reasons behind it was observed. Concerns revolving steroid use, self efficacy, and frequency, and physician-patient interaction were largely respond on.

  • In a survey with 235 individuals, caregivers reported frequent sleep disturbance, exhaustion, worry, and social isolation due to their child's eczema.

  • In a survey regarding treatment adherence, 86 parents reported worry about side effects, sympton resolution, and distrust in medication efficacy as the reasoning for medicine inadherence.

  • In an international survey (n=103), 78% patients reported pain and itch. The terms “burning” and “stinging” were two of the most common experiences mentioned. A strong correlation between AD severity index and skin pain was found.

  • In a study on a two way text messaging program for type 2 diabetes self management, high satisaction was found accross 93 adult patients with poorly controlled type 2 diabetes.

  • Mobile Health (mHealth) utilizes mobile devices to engage patients with their health care. Text messaging has been used to promote health actions, chronic disease management, medical adherence, prenatal care, weight loss, and physical activity. Engagement and experimentation to promote enrollment is being implemented. Read more here

  • Caregivers of children with eczema report high levels of stress, feelings of isolation, and need for social support in this survey. These effects were found to accumulate over time and impact career, finacnes, and social activities. One-to-one mentorship and emailing group were tested to determine program satisfaction. No significant difference between stress in groups were found. However, self reported eczema symptoms decreased.

  • This publication emphasizes the gap in patient input and eczema care guidelines. A review by the British Journal of Dermatology found that less than 25% of eczema guidelines included patient input. This publication also highlights three different guidelines that do include the patient voice, suggesting that more eczema care guidelines should follow this inclusive model. The patient voice is crucial in creating quality patient care for the population they are meant to serve.

    Capozza, K., Vastrup, A., Proctor, A., Roberts, A., Picozza, M., Manion, R., Talent, C., Hering, M., Merhand, S., Funk, M., Tullos, K.Z. and Arents, B.W.M. (2022), The sound of silence: where are the voices of patients in eczema guideline development?. Br J Dermatol, 187: 1005-1006. https://doi.org/10.1111/bjd.21822

  • This publication focuses on optimizing patient care by incorporation of patient voices, evidence based recommendation, and transparency. A rigorous set of six criteria was used to ensure the trustworthiness of guidelines. Additionally, guideline liasons are patients and caregivers who give first handed input to the development of the guidelines. Distinguishable and novel approaches set these guidelines apart from other existing guidelines for eczema care.

    Agarwal, A., Chen, L., Capozza, K., Roberts, A., Golden, D. B. K., Shaker, M. S., Guyatt, G. H., Schneider, L. C., & Chu, D. K. (2022). Trustworthy patient-centered guidelines: Insights from atopic dermatitis and a proposal for the future. Journal of Allergy and Clinical Immunology: In Practice, 10(11), 2875–2877. https://doi.org/10.1016/j.jaip.2022.06.017

  1. Howie L, Orevillo K, Tu M, Schwartz A, Funk M, Talent C, Capozza K. The burden of atopic dermatitis in Australia: Medical care, treatment satisfaction, financial impact, long-term control and quality of life. Australas J Dermatol. 2024 May 8. doi: 10.1111/ajd.14299. Epub ahead of print. PMID: 38715470.

  2. Capozza K, Tu M, Schwartz A, de Tena Smith ÁL. Atopic dermatitis in Spain: Patient and caregiver experiences with disease burden, care and treatments. Aten Primaria. 2024 May;56(5):102908. doi: 10.1016/j.aprim.2024.102908. Epub 2024 Mar 12. PMID: 38479199; PMCID: PMC10944104.

  3. Hartono, S.P., Chatrath, S., Aktas, O. et al. Interventions for anxiety and depression in patients with atopic dermatitis: a systematic review and meta-analysis. Sci Rep 14, 8844 (2024). https://doi.org/10.1038/s41598-024-59162-9

  4. Capozza K, Tu M, Schwartz A, Johnson JL, Ladner M. Patients' and Caregivers' Experiences Navigating the Burden of Atopic Dermatitis in Argentina. Medicina (Kaunas). 2024 Mar 31;60(4):584. doi: 10.3390/medicina60040584. PMID: 38674230; PMCID: PMC11052293.

  5. AAAAI/ACAAI JTF Atopic Dermatitis Guideline Panel; Chu DK, Schneider L, Asiniwasis RN, Boguniewicz M, De Benedetto A, Ellison K, Frazier WT, Greenhawt M, Huynh J, Kim E, LeBovidge J, Lind ML, Lio P, Martin SA, O'Brien M, Ong PY, Silverberg JI, Spergel JM, Wang J, Wheeler KE, Guyatt GH; Patient Groups, GlobalParents for Eczema Research; Capozza K; National Eczema Association; Begolka WS; Evidence in Allergy Group; Chu AWL, Zhao IX, Chen L, Oykhman P, Bakaa L; AAAAI/ACAAI Joint Task Force on Practice Parameters; Golden D, Shaker M, Bernstein JA, Greenhawt M, Horner CC, Lieberman J, Stukus D, Rank MA, Wang J, Ellis A, Abrams E, Ledford D, Chu DK. Atopic dermatitis (eczema) guidelines: 2023 American Academy of Allergy, Asthma and Immunology/American College of Allergy, Asthma and Immunology Joint Task Force on Practice Parameters GRADE-and Institute of Medicine-based recommendations. Ann Allergy Asthma Immunol. 2023 Dec 18:S1081-1206(23)01455-2. doi: 10.1016/j.anai.2023.11.009. Epub of print. PMID: 38108679.

  6. Moxham F, Cutaran C, Sadocha J, Capozza K. Hidden gems: a pilot project to solicit and reward patients' and caregivers' ideas for research. Res Involv Engagem. 2023 Oct 13;9(1):93. doi: 10.1186/s40900-023-00473-y. PMID: 37833815; PMCID: PMC10576294.

  7. Chong AC, Schwartz A, Smith Begolka W, Tullos KZ, Capozza K. Specialist care and mental health is associated with long-term control of atopic dermatitis symptoms: A cross-sectional survey of patients and caregivers in the United States. JAAD Int. 2023 Aug 31;13:112-114. doi: 10.1016/j.jdin.2023.08.016. PMID: 37779557; PMCID: PMC10541459.

  8. Chatrath S, LeBovidge J, Jack C, Abuabara K, Schneider LC, Capozza K, Kelley K, Silverberg JI. Mental health interventions for atopic dermatitis: knowledge gaps, pilot programmes and future directions. Clin Exp Dermatol. 2023 Dec 19;49(1):9-17. doi: 10.1093/ced/llad315. PMID: 37706273.

  9. Chu AWL, Wong MM, Rayner DG, Guyatt GH, Díaz Martinez JP, Ceccacci R, Zhao IX, McMullen E, Srivastava A, Wang J, Wen A, Wang FC, Brignardello-Petersen R, Izcovich A, Oykhman P, Wheeler KE, Wang J, Spergel JM, Singh JA, Silverberg JI, Ong PY, O'Brien M, Martin SA, Lio PA, Lind ML, LeBovidge J, Kim E, Huynh J, Greenhawt M, Gardner DD, Frazier WT, Ellison K, Chen L, Capozza K, De Benedetto A, Boguniewicz M, Smith Begolka W, Asiniwasis RN, Schneider LC, Chu DK. Systemic treatments for atopic dermatitis (eczema): Systematic review and network meta- analysis of randomized trials. J Allergy Clin Immunol. 2023 Dec;152(6):1470-1492. doi: 10.1016/j.jaci.2023.08.029. Epub 2023 Sep 9. PMID: 37678577.

  10. Chu DK, Chu AWL, Rayner DG, Guyatt GH, Yepes-Nuñez JJ, Gomez-Escobar L, Pérez-Herrera LC, Díaz Martinez JP, Brignardello-Petersen R, Sadeghirad B, Wong MM, Ceccacci R, Zhao IX, Basmaji J, MacDonald M, Chu X, Islam N, Gao Y, Izcovich A, Asiniwasis RN, Boguniewicz M, De Benedetto A, Capozza K, Chen L, Ellison K, Frazier WT, Greenhawt M, Huynh J, LeBovidge J, Lio PA, Martin SA, O'Brien M, Ong PY, Silverberg JI, Spergel JM, Smith Begolka W, Wang J, Wheeler KE, Gardner DD, Schneider L. Topical treatments for atopic dermatitis (eczema): Systematic review and network meta-analysis of randomized trials. J Allergy Clin Immunol. 2023 Dec;152(6):1493-1519. doi: 10.1016/j.jaci.2023.08.030. Epub 2023 Sep 9. PMID: 37678572.

  11. Ratley G, Sun AA, Capozza K, Barta K, Myles IA. Survey of topical exposure concerns for patients and caregivers dealing with atopic dermatitis. Front Allergy. 2023 Aug 10;4:1210973. doi: 10.3389/falgy.2023.1210973. PMID: 37637138; PMCID: PMC10448960

  12. Chong AC, Schwartz A, Lang J, Ong PY, Myles IA, Silverberg JI, Capozza K. Patients' and Caregivers' Preferences for Mental Health Care and Support in Atopic Dermatitis. Dermatitis. 2023 Aug 9. doi: 10.1089/derm.2023.0111. Epub ahead of print. PMID: 37579072

  13. Paller AS, Weidinger S, Capozza K, Pink AE, Tang M, Guillaume X, Praestgaard A, Leclerc M, Chuang CC, Thomas RB, Prescilla R. Similarities and Differences in the Perception of Atopic Dermatitis Burden Between Patients, Caregivers, and Independent Physicians (AD-GAP Survey). Dermatol Ther (Heidelb). 2023 Apr;13(4):961-980. doi: 10.1007/s13555-022-00850-7. Epub 2023 Mar 15. PMID: 36922463; PMCID: PMC10060494.

  14. Maleki-Yazdi KA, Heen AF, Zhao IX, Guyatt GH, Suzumura EA, Makhdami N, Chen L, Winders T, Wheeler KE, Wang J, Spergel J, Silverberg JI, Ong PY, O'Brien M, Martin SA, Lio PA, Lind ML, LeBovidge J, Kim E, Huynh J, Greenhawt M, Frazier WT, Ellison K, Capozza K, De Benedetto A, Boguniewicz M, Begolka WS, Asiniwasis RN, Schneider LC, Chu DK. Values and Preferences of Patients and Caregivers Regarding Treatment of Atopic Dermatitis (Eczema): A Systematic Review. JAMA Dermatol. 2023 Mar 1;159(3):320-330. doi: 10.1001/jamadermatol.2022.6045. PMID: 36696136.

  15. Capozza K. Lost in translation: understanding the experience of atopic eczema among non-English-speaking families. Br J Dermatol. 2023 Mar 30;188(4):456-457. doi: 10.1093/bjd/ljad015. PMID: 36655520.

  16. Capozza K, Funk M, Hering M, Lang J, Merhand S, Manion R, Orevillo K, Picozza M, Proctor A, Schwennesen T, Begolka WS, Tullos K, Talent C, Tu M, Vastrup AS, Schwartz A. Patients' and Caregivers' Experiences With Atopic Dermatitis-Related Burden, Medical Care, and Treatments in 8 Countries. J Allergy Clin Immunol Pract. 2023 Jan;11(1):264-273.e1. doi: 10.1016/j.jaip.2022.10.032. Epub 2022 Nov 2. Erratum in: J Allergy Clin Immunol Pract. 2023 Sep;11(9):2961-2962. PMID: 36332836.

  17. Leshem YA, Chalmers JR, Apfelbacher C, Katoh N, Gerbens LAA, Schmitt J, Spuls PI, Thomas KS, Howells L, Williams HC, Simpson EL; Harmonising Outcome Measures for Eczema (HOME) initiative. Measuring Atopic Eczema Control and Itch Intensity in Clinical Practice: A Consensus Statement From the Harmonising Outcome Measures for Eczema in Clinical Practice (HOME-CP) Initiative. JAMA Dermatol. 2022 Dec 1;158(12):1429-1435. doi: 10.1001/jamadermatol.2022.4211. PMID: 36223090.

  18. Lou TM, Zhang KL, Slesinger NC, Taddeo M, Serrano E, Begolka WS, Capozza K, Paller AS, Griffith JW, Fishbein AB. Positive Psychology Themes in Interviews of Children With Atopic Dermatitis: Qualitative Study. JMIR Pediatr Parent. 2022 Sep 14;5(3):e38725. doi: 10.2196/38725. PMID: 36103242; PMCID: PMC9520397.

  19. Yin Y, Capozza K, Shao Y, Tu M, Ma P, Zeng-Treitler Q, Sun AA, Myles IA. What are patients saying about their experience with atopic dermatitis? Insights from a machine learning analysis of online comments. Skin Health Dis. 2022 Feb 2;2(3):e100. doi: 10.1002/ski2.100. PMID: 36092260; PMCID: PMC9435445

  20. Kim RW, Barta K, Begolka WS, Capozza K, Eftekhari S, Tullos K, Tomaszewski N, Snell-Rood C, Abuabara K. The quantitative impact of atopic dermatitis on caregivers across multiple life domains. Br J Dermatol. 2022 Dec;187(6):1041-1043. doi: 10.1111/bjd.21855. Epub 2022 Sep 26. PMID: 36056761

  21. Capozza K, Vastrup A, Proctor A, Roberts A, Picozza M, Manion R, Talent C, Hering M, Merhand S, Funk M, Tullos KZ, Arents BWM. The sound of silence: where are the voices of patients in eczema guideline development? Br J Dermatol. 2022 Dec;187(6):1005-1006. doi: 10.1111/bjd.21822. Epub 2022 Sep 2. PMID: 36052766; PMCID: PMC10087290.

  22. Oykhman P, Dookie J, Al-Rammahy H, de Benedetto A, Asiniwasis RN, LeBovidge J, Wang J, Ong PY, Lio P, Gutierrez A, Capozza K, Martin SA, Frazier W, Wheeler K, Boguniewicz M, Spergel JM, Greenhawt M, Silverberg JI, Schneider L, Chu DK. Dietary Elimination for the Treatment of Atopic Dermatitis: A Systematic Review and Meta-Analysis. J Allergy Clin Immunol Pract. 2022 Oct;10(10):2657-2666.e8. doi: 10.1016/j.jaip.2022.06.044. Epub 2022 Jul 19. PMID: 35987995.

  23. Kim RW, Barta K, Begolka WS, Capozza K, Eftekhari S, Tullos K, Tomaszewski N, Snell-Rood C, Abuabara K. Qualitative analysis of the impact of atopic dermatitis on caregivers. Br J Dermatol. 2022 Dec;187(6):1038-1041. doi: 10.1111/bjd.21828. Epub 2022 Sep 26. PMID: 35972353

  24. Agarwal A, Chen L, Capozza K, Roberts A, Golden DBK, Shaker MS, Guyatt GH, Schneider LC, Chu DK. Trustworthy Patient-Centered Guidelines: Insights From Atopic Dermatitis and a Proposal for the Future. J Allergy Clin Immunol Pract. 2022 Nov;10(11):2875-2877. doi: 10.1016/j.jaip.2022.06.017. Epub 2022 Jul 7. PMID: 35810111.

  25. Elsawi R, Dainty K, Smith Begolka W, Barta K, Butler L, Capozza K, Eftekhari S, Tullos KZ, Wu W, Drucker AM. The Multidimensional Burden of Atopic Dermatitis Among Adults: Results From a Large National Survey. JAMA Dermatol. 2022 Aug 1;158(8):887-892. doi: 10.1001/jamadermatol.2022.1906. Erratum in: JAMA Dermatol. 2022 Nov 1;158(11):1333. PMID: 35767267; PMCID: PMC9244770.

  26. Capozza K, Schwartz A, Lang JE, Chalmers J, Camilo J, Abuabara K, Kelley K, Harrison J, Vastrup A, Stancavich L, Tai A, Kimball AB, Finlay AY. Impact of childhood atopic dermatitis on life decisions for caregivers and families. J Eur Acad Dermatol Venereol. 2022 Jun;36(6):e451-e454. doi: 10.1111/jdv.17943. Epub 2022 Jan 29. PMID: 35048408

  27. Capozza K. Never the twain shall meet? Bridging the divide between patient perspectives and health professionals and systems. Br J Dermatol. 2021 Apr;184(4):587-588. doi: 10.1111/bjd.19545. Epub 2020 Oct 13. PMID: 33048345.

  28. Capozza K, Gadd H, Kelley K, Russell S, Shi V, Schwartz A. Insights From Caregivers on the Impact of Pediatric Atopic Dermatitis on Families: "I'm Tired, Overwhelmed, and Feel Like I'm Failing as a Mother". Dermatitis. 2020 May/Jun;31(3):223-227. doi: 10.1097/DER.0000000000000582. PMID: 32091463

  29. Capozza K, Schwartz A. Does it work and is it safe? Parents' perspectives on adherence to medication for atopic dermatitis. Pediatr Dermatol. 2020 Jan;37(1):58-61. doi: 10.1111/pde.13991. Epub 2019 Aug 28. PMID: 31464037

  30. Maarouf M, Kromenacker B, Capozza KL, Kempton D, Hendricks A, Tran K, Shi VY. Pain and Itch Are Dual Burdens in Atopic Dermatitis. Dermatitis. 2018 Sep/Oct;29(5):278-281. doi: 10.1097/DER.0000000000000406. PMID: 30179978

  31. Capozza K, Shao Y, Zeng Q. "Crowdsourcing" a patient-centered research agenda for pediatric atopic dermatitis. Int J Dermatol. 2016 Dec;55(12):1414-1416. doi: 10.1111/ijd.13359. Epub 2016 Jul 14. PMID: 27416358

  32. Capozza K, Woolsey S, Georgsson M, Black J, Bello N, Lence C, Oostema S, North C. Going mobile with diabetes support: a randomized study of a text message-based personalized behavioral intervention for type 2 diabetes self- care. Diabetes Spectr. 2015 May;28(2):83-91. doi: 10.2337/diaspect.28.2.83. PMID: 25987806; PMCID: PMC4433079.

  33. Abebe NA, Capozza KL, Des Jardins TR, Kulick DA, Rein AL, Schachter AA, Turske SA. Considerations for community-based mHealth initiatives: insights from three Beacon Communities. J Med Internet Res. 2013 Oct 15;15(10):e221. doi: 10.2196/jmir.2803. PMID: 24128406; PMCID: PMC3806518.

  34. UC Berkeley Labor Center; Jacobs K, Capozza K, Roby DH, Kominski GF, Brown ER. Health coverage expansion in California: what can consumers afford to spend? Policy Brief UCLA Cent Health Policy Res. 2007 Sep:1-7. PMID: 17972402.

  35. Tu, Michelle & Amaro, Lauren & Kidder, Bennett & Kelley, Keri & Capozza, Korey & Schwartz, Alan. (2023). 318 Facilitating mentorship for caregivers of children with atopic dermatitis: the supporting eczema caregivers initiative. British Journal of Dermatology. 188. 10.1093/bjd/ljac140.014. Lou TM, Zhang KL, Slesinger NC, Taddeo M, Serrano E, Begolka WS, Capozza K, Paller AS, Griffith JW, Fishbein AB, Positive Psychology Themes in Interviews of Children with Atopic Dermatitis: Qualitative Study, JMIR Pediatr Parent 2022;0(0):e0 doi: 10.2196/387

  36. The More Than Skin Deep Meeting: Understanding the Lived Experience of Eczema, report from the Patient Focused Drug Development Meeting, September 2019. Report link.

  37. Capozza, K. and Redding, M. A Call for a Compassionate Approach to Itch-related Scratching in Children With Eczema, The Dermatologist, January 2020. https://www.the-dermatologist.com/article/call-compassionate-approach-itch-related-scratching-children-eczema

  38. Capozza, K, Schwartz, A. Does it work and is it safe? Parents' perspectives on adherence to medication for atopic dermatitis. Pediatr Dermatol. 2019; 00: 1– 4. https://doi.org/10.1111/pde.13991

  39. Maarouf, M, Kromenacker, B., Capozza, K., Kempton, D., Hendricks, A., Tran, K., Shi, V. Pain and Itch Are Dual Burden in Atopic Dermatitis. Dermatitis: August 31, 2018 - Volume Publish Ahead of Print - Issue - p doi: 10.1097/DER.0000000000000406"

  40. Home Grown Innovations from Families Impacted by Severe Eczema, The Dermatologist, February/March 2017

  41. Capozza K, Shao Y, Zeng Q. "Crowdsourcing" a patient-centered research agenda for pediatric atopic dermatitis. Int J Dermatol. 2016 Dec;55(12):1414-1416. doi: 10.1111/ijd.13359. Epub 2016 Jul 14. PMID: 27416358.

  42. Crowdsourcing pinpoints unmet needs in eczema research," The Dermatology Times, October 10, 201

  43. Agarwal, A., Chen, L., Capozza, K., Roberts, A., Golden, D. B. K., Shaker, M. S., Guyatt, G. H., Schneider, L. C., & Chu, D. K. (2022). Trustworthy patient-centered guidelines: Insights from atopic dermatitis and a proposal for the future. Journal of Allergy and Clinical Immunology: In Practice, 10(11), 2875–2877. https://doi.org/10.1016/j.jaip.2022.06.017